Reports
For a world and detailed U.S. reports, please click on the picture.
Here is the link to an infographic created by Lenka Hrnčířová for Czech Republic.
Here is the link to an infographic created by Dr Ru Ying Cai of Aspect (Australia) on the basis of the Australian data.
Here is a link to an infographic created by Dr Jo Van Herwegen and Ms Hyelin Kye (both UCL) on the basis of the UK data.
Infographic on data of families with a child with Williams syndrome (world data)
Infographie relative aux données des familles ayant un enfant avec le syndrome de Williams
Infographik über die Daten der Familien mit einem Kind mit Williams Beuren Syndrom
Publications
2022
Sideropoulos, V., Kye, H., Dukes, D., Samson,
A. C., Palikara, O., & Van Herwegen, J. (2022). Anxiety and
Worries of Individuals with Down Syndrome During the COVID-19
Pandemic: A Comparative Study in the UK. Journal of Autism
and Developmental
Disorders.
https://doi.org/10.1007/s10803-022-05450-0
link
2021
Di Poi, G., Dukes, D., Tran, M., & Samson,
A. C. (2021). Comment les familles d’enfants avec besoins
éducatifs particuliers ont vécu la crise de la COVID-19 :
Observations préliminaires pour la Suisse. [How families with
children with special educational needs experienced the
Covid-19 crisis: preliminary observations for
Switzerland].
Revue suisse de pédagogie spécialisée. 1, 9-18.
Read here (French)
Dukes, D., Van Herwegen, J., Alessandi, M., Alnemary, F.,
Amani Rad, J., Banta Lavenex, P., Bolshakov, N., Bölte, S.,
Ying Cai, R., Campos, R., Chirita-Emandi, A., P. Costa, A.,
Costanzo, F., di Poi, G., Des Portes, V., Faivre, L.,
Famelart, N., Fisher, M., Gamaiunova, L., … Samson,
A. C. (2021, February 15). Introducing the COVID-19 crisis
special education needs coping survey.
PsyArXiv.
https://doi.org/10.31234/osf.io/rtswa
Dukes, D., & Samson, A. C. (2021). COVID-19 : Donnons la
parole aux parents d’enfants avec des besoins éducatifs
particuliers [COVID-19: giving voice to the parents of
children with special educational needs].
Pages romandes
:
Revue sur la pédagogie spécialisée les déficiences
intellectuelles et développementales, 3, 28-31.
Prosetzky, I., Poustka, L., Dukes, D., & Samson, A. C. (2021). Eine
internationale Studie zu Auswirkungen der COVID-19-Pandemie auf
Familien mit einem behinderten Kind: Wie ging es den Familien in
Deutschland? Ein Bericht. [An international study on the
impact of the COVID-19 pandemic on families with a child with
special educational needs: How did German families fare? A
report].
Teilhabe, 60, 2.
Read here (German)
Samson, A. C., Di Poi, G., Tran, M., & Dukes, D. (2021). Die
Auswirkungen der COVID-19 Pandemie in der Schweiz: Erste
Beobachtungen bei Familien mit Kindern sonderpädagogischem
Förderbedarf [The effects of the COVID-19 pandemic in
Switzerland: First observations in families with children with
special educational needs].
Schweizerische Zeitschrift für
Heilpädagogik, 27(5-6), 18-25. [The link will be available soon].
Sideropoulos, V., Dukes, D., Hanley, M., Palikara, O.,
Rhodes, S. Riby D., Samson, A. C., & Van Herwegen, J. (2021,
February 3). The impact of COVID-19 on anxiety and wellbeing
for families of individuals with Special Education Needs and
Disabilities in the UK.
PsyArXiv
https://doi.org/10.31234/osf.io/gyhd9
Su, X., Cai, R. Y., Uljarević, M., Van Herwegen, J., Dukes,
D., Yang, Y., Peng, X., & Samson, A. C. (2021). Brief Report:
A cross-sectional study of anxiety levels and concerns of
Chinese families of children with special educational needs
and disabilities post-first-wave of COVID-19. Frontiers in
Psychiatry, 12, 708465.
doi: 10.3389/fpsyt.2021.708465
2020
Van Herwegen, J., Dukes, D., & Samson, A.C. (2020).
COVID19
Crisis Response Survey for families of Individuals with
Special Needs [Data set]. OSFHOME. Retrieved May 27, 2020,
from
osf.io/5nkq9
Van Herwegen, J., … Samson, A.C., & Dukes, D. (2020). Written
evidence submitted to the UK government on the impact of COVID-19 on
education and children’s services:
The impact on families of
children with Special Educational Needs and Disabilities in
the UK. Retrieved July 23,
2020.
https://committees.parliament.uk/writtenevidence/8883/pdf/
Conference contributions
2021
Samson, A. C. (2021, September 11).
Corona hier – Corona da:
Risiken und Chancen der Coronakrise für die
Psychotherapie. Integration in der Psychotherapie. Ängste und
Sorgen von Familien mit Kindern mit sonderpädagogischem
Förderbedarf während der COVID-19 Pandemie: eine
internationale Studie [Corona here - Corona there: Risks and
opportunities of the corona crisis for
psychotherapy. Integration in psychotherapy. Fears and
concerns of families with children with special educational
needs during the COVID-19 pandemic: An international study]
[Invited talk]. Österreichisches, Schweizerisches und
Deutsches Netzwerk der Society for the Exploration of
Psychotherapy Integration (SEPI) und Österreichische
Gesellschaft für Integrative Therapie (ÖGIT), Bregenz,
Austria.
Dukes, D., Van Herwegen, J., & Samson, A.C. (2021, July 6-8).
A symposium entitled, Anxiety, Stress and Wellbeing in families and individuals with Developmental Disorders before and during COVID19: National and international perspectives International[Organized Symposium]. Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD), Amsterdam, Netherlands (online conference).
Dukes, D., Van Herwegen, J., Meuleman, B., Tran, M., & Samson, A. C. (2021, July 6-8).
Evaluating anxiety in the parents of individuals with Neurodevelopmental Disorders during the early months of COVID-19: An international study [Oral presentation as part of a symposium.] International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD), Amsterdam, Netherlands (online conference).
Samson, A. C., Van Herwegen, J., Tran, M., Papon, A., & Dukes, D. (2021, July 6-8).
Emotion regulation in the COVID-19 pandemic in individuals with Neurodevelopmental Disorders [Oral presentation as part of a symposium]. International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD), Amsterdam, Netherlands (online conference).
Dukes, D. & Samson, A. C. (2021, June 3).
Anxiety and emotion regulation in families with children with special education needs during the COVID-19 pandemic: an international study [Keynote Invitation]. Konferenz der Lehrenden der Geistigbehindertenpädagogik an Wissenschaftlichen Hochschulen in Deutschsprachigen Ländern, Hannover, Germany (online conference).
Dukes, D. & Samson, A. C. (2021, May 28).
How did families with children with SEND cope with COVID-19: observations during the first wave of the pandemic[Oral presentation]. Research colloquim, Department of Special Education, University of Fribourg, Fribourg, Switzerland.
Samson, A. C. (2021, May 7-9).
Wie ging es Familien mit Kindern mit Williams-Beuren-Syndrom während der COVID-19 Pandemie?[How did families with children with Williams-Beuren syndrome fare during the COVID-19 pandemic?] [Oral presentation]. 12. Bundesverbandstag des Bundesverbandes Williams-Beuren-Syndrom e.V., Willingen/Sauerland, Germany (online conference).
Samson, A. C., Meuleman, B., Tran, M., Van Herwegen, J., & Dukes, D. (2021, April 13–16).
Explaining the differences in COVID-19 anxiety levels of families with children with Special Educational Needs [Oral presentation]. The Virtual Conference of the Society for Affective Sciences (SAS) (online conference).
Samson, A. C. (2021, March 20).
Coping with the COVID-19 pandemic: An Emotion Regulation Perspective [Invited Talk]. Annual Autism Conference, Stanford Medical School, Stanford, CA, United States (online conference).
Samson, A. C. (2021, March 19).
Coping in times of COVID-19: Emotion regulation in autism spectrum disorders [Invited Keynote]. The 20th National Autism Congress, congress venue De Jaarbeurs, Utrecht, Netherlands (online conference).
Samson, A. C. (2021, March 4).
Ängste und Sorgen von Familien mit Kindern auf dem Autismus Spektrum während der COVID-19 Pandemie: eine internationale Studie [Fears and concerns of families with children on the autism spectrum during the COVID-19 pandemic: An international study] [Invited Keynote talk]. WTAS, Germany (online conference).
2020
Cai.,R.Y., Dukes, D., Van Herwegen, J., Uljarević, M., &
Samson, A. C. (2020, December 10–11).
Australian families of
children with neurodevelopmental and neuropsychiatric
conditions during the COVID-19 pandemic: An investigation of
parent and child COVID-19 anxiety levels and child preference
for sameness [Oral presentation]. Australasian Society for
Autism in Research, Wellington, New Zealand.
Samson, A. C., & Dukes, D. (2020, December 1).
How did
families with special education needs deal with the COVID-19
pandemic: The situation in Switzerland [Oral presentation]
First meeting of event on overview of studies about Covid-19
in education in Switzerland, EPFL and the Swiss Government
(online meeting).
Samson, A. C. (2020, November 28).
The impact of the COVID-19
pandemic on individuals with special educational needs
[Invited Keynote]. The 9th Annual Meeting of the Japanese
Society of Developmental Neuroscience (JSDN) (online meeting).
Link
to video
Samson, A. C. (2020, July 17).
“The impact of COVID-19 on
children and young people across the globe” [Invited
talk]. The European Conference on Education & The European
Conference on Language Learning, ECE/ECLL2020, IAFOR
Conference, ICCE London, London, England (online
conference).
https://www.facebook.com/IAFORJAPAN/videos/287351039267802
Newspaper contributions
Dattaro, L. (2020, April 30). Autism researchers adapt studies
for a socially distant
world. Spectrum.
https://www.spectrumnews.org/news/autism-researchers-adapt-studies-for-a-socially-distant-world/
Fasal, M. (2020, May 26). COVID-19: Familien mit besonderen
Bedürfnissen am Anschlag? [COVID-19: Families with special
needs on the attack?]
Alma &
Georges. https://www3.unifr.ch/alma-georges/articles/2020/covid-19-familien-mit-besonderen-beduerfnissen-am-anschlag?lang=de
Samson, A. C. (2020, September). Wie geht es Familien von
Kindern mit besonderen Bedürfnissenwährend der COVID-19
Pandemie? Eine internationale Studie [How are families of
children with special needs doing during the COVID-19
pandemic? An international study].
Wissenschaftlichen
Gesellschaft Autismus-Spektrum, 16, 10–14.
http://wgas-autismus.org/wp-content/uploads/2020/09/Newsletter_0920_bunt_final.pdf
Poster presentations
Hrnčířová, L., Jariabková, K., & Zámečníková, D. (2020,
September 17).
Mezinárodní výzkum dopadu pandemie covid-19 na
rodiny dětí se speciálními potřebami: Průběžná informace
[International research on the impact of the covid-19 pandemic
on families of children with special needs: An update] [Poster
presentation]. Psychologické dny 2020, Olomouc, Czech
Republic.
https://drive.google.com/file/d/1AP2N2lnT1wg6Gf3Kil5NizZCWjf9jh70/view
About this poster: A psychology day took place in Olomouc,
Czech Republic. We presented a poster with the main
information about the research project - its aims,
participating countries, initial results and recommended
procedures according to the short report prepared by Jo Van
Herwegen with a team of authors. The abstract is available at
the conference website:
http://www.psychologickedny.info/p/blog-page_2.html