Reports
For a world and detailed U.S. reports, please click on the picture.
Here is the link to an infographic created by Lenka Hrnčířová for Czech Republic.
Here is the link to an infographic created by Dr Ru Ying Cai of Aspect (Australia) on the basis of the Australian data.
Here is a link to an infographic created by Dr Jo Van Herwegen and Ms Hyelin Kye (both UCL) on the basis of the UK data.
Infographic on data of families with a child with Williams syndrome (world data)
Infographie relative aux données des familles ayant un enfant avec le syndrome de Williams
Infographik über die Daten der Familien mit einem Kind mit Williams Beuren Syndrom
Publications
2022
Sideropoulos, V., Kye, H., Dukes, D., Samson, A. C., Palikara, O., & Van Herwegen, J. (2022). Anxiety and Worries of Individuals with Down Syndrome During the COVID-19 Pandemic: A Comparative Study in the UK. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-022-05450-0 link2021
Di Poi, G., Dukes, D., Tran, M., & Samson, A. C. (2021). Comment les familles d’enfants avec besoins éducatifs particuliers ont vécu la crise de la COVID-19 : Observations préliminaires pour la Suisse. [How families with children with special educational needs experienced the Covid-19 crisis: preliminary observations for Switzerland]. Revue suisse de pédagogie spécialisée. 1, 9-18. Read here (French)Dukes, D., Van Herwegen, J., Alessandi, M., Alnemary, F., Amani Rad, J., Banta Lavenex, P., Bolshakov, N., Bölte, S., Ying Cai, R., Campos, R., Chirita-Emandi, A., P. Costa, A., Costanzo, F., di Poi, G., Des Portes, V., Faivre, L., Famelart, N., Fisher, M., Gamaiunova, L., … Samson, A. C. (2021, February 15). Introducing the COVID-19 crisis special education needs coping survey. PsyArXiv. https://doi.org/10.31234/osf.io/rtswa
Dukes, D., & Samson, A. C. (2021). COVID-19 : Donnons la parole aux parents d’enfants avec des besoins éducatifs particuliers [COVID-19: giving voice to the parents of children with special educational needs]. Pages romandes : Revue sur la pédagogie spécialisée les déficiences intellectuelles et développementales, 3, 28-31.
Prosetzky, I., Poustka, L., Dukes, D., & Samson, A. C. (2021). Eine internationale Studie zu Auswirkungen der COVID-19-Pandemie auf Familien mit einem behinderten Kind: Wie ging es den Familien in Deutschland? Ein Bericht. [An international study on the impact of the COVID-19 pandemic on families with a child with special educational needs: How did German families fare? A report]. Teilhabe, 60, 2. Read here (German)
Samson, A. C., Di Poi, G., Tran, M., & Dukes, D. (2021). Die Auswirkungen der COVID-19 Pandemie in der Schweiz: Erste Beobachtungen bei Familien mit Kindern sonderpädagogischem Förderbedarf [The effects of the COVID-19 pandemic in Switzerland: First observations in families with children with special educational needs]. Schweizerische Zeitschrift für Heilpädagogik, 27(5-6), 18-25. [The link will be available soon].
Sideropoulos, V., Dukes, D., Hanley, M., Palikara, O., Rhodes, S. Riby D., Samson, A. C., & Van Herwegen, J. (2021, February 3). The impact of COVID-19 on anxiety and wellbeing for families of individuals with Special Education Needs and Disabilities in the UK. PsyArXiv https://doi.org/10.31234/osf.io/gyhd9
Su, X., Cai, R. Y., Uljarević, M., Van Herwegen, J., Dukes, D., Yang, Y., Peng, X., & Samson, A. C. (2021). Brief Report: A cross-sectional study of anxiety levels and concerns of Chinese families of children with special educational needs and disabilities post-first-wave of COVID-19. Frontiers in Psychiatry, 12, 708465. doi: 10.3389/fpsyt.2021.708465
2020
Van Herwegen, J., Dukes, D., & Samson, A.C. (2020). COVID19 Crisis Response Survey for families of Individuals with Special Needs [Data set]. OSFHOME. Retrieved May 27, 2020, from osf.io/5nkq9Van Herwegen, J., … Samson, A.C., & Dukes, D. (2020). Written evidence submitted to the UK government on the impact of COVID-19 on education and children’s services: The impact on families of children with Special Educational Needs and Disabilities in the UK. Retrieved July 23, 2020. https://committees.parliament.uk/writtenevidence/8883/pdf/
Conference contributions
2021
Samson, A. C. (2021, September 11). Corona hier – Corona da: Risiken und Chancen der Coronakrise für die Psychotherapie. Integration in der Psychotherapie. Ängste und Sorgen von Familien mit Kindern mit sonderpädagogischem Förderbedarf während der COVID-19 Pandemie: eine internationale Studie [Corona here - Corona there: Risks and opportunities of the corona crisis for psychotherapy. Integration in psychotherapy. Fears and concerns of families with children with special educational needs during the COVID-19 pandemic: An international study] [Invited talk]. Österreichisches, Schweizerisches und Deutsches Netzwerk der Society for the Exploration of Psychotherapy Integration (SEPI) und Österreichische Gesellschaft für Integrative Therapie (ÖGIT), Bregenz, Austria.Dukes, D., Van Herwegen, J., & Samson, A.C. (2021, July 6-8). A symposium entitled, Anxiety, Stress and Wellbeing in families and individuals with Developmental Disorders before and during COVID19: National and international perspectives International[Organized Symposium]. Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD), Amsterdam, Netherlands (online conference).
Dukes, D., Van Herwegen, J., Meuleman, B., Tran, M., & Samson, A. C. (2021, July 6-8). Evaluating anxiety in the parents of individuals with Neurodevelopmental Disorders during the early months of COVID-19: An international study [Oral presentation as part of a symposium.] International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD), Amsterdam, Netherlands (online conference).
Samson, A. C., Van Herwegen, J., Tran, M., Papon, A., & Dukes, D. (2021, July 6-8). Emotion regulation in the COVID-19 pandemic in individuals with Neurodevelopmental Disorders [Oral presentation as part of a symposium]. International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD), Amsterdam, Netherlands (online conference).
Dukes, D. & Samson, A. C. (2021, June 3). Anxiety and emotion regulation in families with children with special education needs during the COVID-19 pandemic: an international study [Keynote Invitation]. Konferenz der Lehrenden der Geistigbehindertenpädagogik an Wissenschaftlichen Hochschulen in Deutschsprachigen Ländern, Hannover, Germany (online conference).
Dukes, D. & Samson, A. C. (2021, May 28). How did families with children with SEND cope with COVID-19: observations during the first wave of the pandemic[Oral presentation]. Research colloquim, Department of Special Education, University of Fribourg, Fribourg, Switzerland.
Samson, A. C. (2021, May 7-9). Wie ging es Familien mit Kindern mit Williams-Beuren-Syndrom während der COVID-19 Pandemie?[How did families with children with Williams-Beuren syndrome fare during the COVID-19 pandemic?] [Oral presentation]. 12. Bundesverbandstag des Bundesverbandes Williams-Beuren-Syndrom e.V., Willingen/Sauerland, Germany (online conference).
Samson, A. C., Meuleman, B., Tran, M., Van Herwegen, J., & Dukes, D. (2021, April 13–16). Explaining the differences in COVID-19 anxiety levels of families with children with Special Educational Needs [Oral presentation]. The Virtual Conference of the Society for Affective Sciences (SAS) (online conference).
Samson, A. C. (2021, March 20). Coping with the COVID-19 pandemic: An Emotion Regulation Perspective [Invited Talk]. Annual Autism Conference, Stanford Medical School, Stanford, CA, United States (online conference).
Samson, A. C. (2021, March 19). Coping in times of COVID-19: Emotion regulation in autism spectrum disorders [Invited Keynote]. The 20th National Autism Congress, congress venue De Jaarbeurs, Utrecht, Netherlands (online conference).
Samson, A. C. (2021, March 4). Ängste und Sorgen von Familien mit Kindern auf dem Autismus Spektrum während der COVID-19 Pandemie: eine internationale Studie [Fears and concerns of families with children on the autism spectrum during the COVID-19 pandemic: An international study] [Invited Keynote talk]. WTAS, Germany (online conference).
2020
Cai.,R.Y., Dukes, D., Van Herwegen, J., Uljarević, M., & Samson, A. C. (2020, December 10–11). Australian families of children with neurodevelopmental and neuropsychiatric conditions during the COVID-19 pandemic: An investigation of parent and child COVID-19 anxiety levels and child preference for sameness [Oral presentation]. Australasian Society for Autism in Research, Wellington, New Zealand.Samson, A. C., & Dukes, D. (2020, December 1). How did families with special education needs deal with the COVID-19 pandemic: The situation in Switzerland [Oral presentation] First meeting of event on overview of studies about Covid-19 in education in Switzerland, EPFL and the Swiss Government (online meeting).
Samson, A. C. (2020, November 28). The impact of the COVID-19 pandemic on individuals with special educational needs [Invited Keynote]. The 9th Annual Meeting of the Japanese Society of Developmental Neuroscience (JSDN) (online meeting). Link to video
Samson, A. C. (2020, July 17). “The impact of COVID-19 on children and young people across the globe” [Invited talk]. The European Conference on Education & The European Conference on Language Learning, ECE/ECLL2020, IAFOR Conference, ICCE London, London, England (online conference). https://www.facebook.com/IAFORJAPAN/videos/287351039267802
Newspaper contributions
Dattaro, L. (2020, April 30). Autism researchers adapt studies for a socially distant world. Spectrum. https://www.spectrumnews.org/news/autism-researchers-adapt-studies-for-a-socially-distant-world/Fasal, M. (2020, May 26). COVID-19: Familien mit besonderen Bedürfnissen am Anschlag? [COVID-19: Families with special needs on the attack?] Alma & Georges. https://www3.unifr.ch/alma-georges/articles/2020/covid-19-familien-mit-besonderen-beduerfnissen-am-anschlag?lang=de
Samson, A. C. (2020, September). Wie geht es Familien von Kindern mit besonderen Bedürfnissenwährend der COVID-19 Pandemie? Eine internationale Studie [How are families of children with special needs doing during the COVID-19 pandemic? An international study]. Wissenschaftlichen Gesellschaft Autismus-Spektrum, 16, 10–14. http://wgas-autismus.org/wp-content/uploads/2020/09/Newsletter_0920_bunt_final.pdf
Poster presentations
Hrnčířová, L., Jariabková, K., & Zámečníková, D. (2020, September 17). Mezinárodní výzkum dopadu pandemie covid-19 na rodiny dětí se speciálními potřebami: Průběžná informace [International research on the impact of the covid-19 pandemic on families of children with special needs: An update] [Poster presentation]. Psychologické dny 2020, Olomouc, Czech Republic. https://drive.google.com/file/d/1AP2N2lnT1wg6Gf3Kil5NizZCWjf9jh70/viewAbout this poster: A psychology day took place in Olomouc, Czech Republic. We presented a poster with the main information about the research project - its aims, participating countries, initial results and recommended procedures according to the short report prepared by Jo Van Herwegen with a team of authors. The abstract is available at the conference website: http://www.psychologickedny.info/p/blog-page_2.html