These are challenging times for us all – also and particularly for
people with special needs and their families. It is precisely in times
like these that such vulnerable groups must not be neglected, and that
special attention must be paid to the impact of the crisis on their
lives. This is the reason why we, an international collaboration of
researchers from more than 14 countries, have joined forces to
investigate how the coronavirus (COVID-19) pandemic and its political,
social and economic repercussions are impacting on these individuals
and their families. We aim to contribute to a better understanding of
their experiences and influence the design of future interventions to
improve their quality of life.
To this end, we have created an online questionnaire in more than 9 languages aimed at you, the families, the parents or caregivers of people with special needs (e.g. Autism Spectrum Disorder, Williams syndrome, Down syndrome, etc.) that can be filled out conveniently from home in about 30 minutes.
To participate, please choose your language on this page.
We are very grateful for your support. If you have any questions, please feel free to contact us via this e-mail address email@example.com
Download the Flyer in PDF
How are families of children with special needs doing during the CO- VID-19 pandemic? An international study Since the World Health Organization announced the COVID 19 pandemic in early March, the virus has left hardly any nation untouched. The situation had an enormous impact on the daily lives of many, especially when a country‘s government imposed a lockdown on its citizens. To examine the extent to which the lives of families with children with special needs - including families with genetic diseases, physical and mental disabilities, or developmental disorders such as autism spectrum disorders - have changed, three scientists - Prof. Andrea Samson (FernUni Switzerland & University of Fribourg), Dr. Daniel Dukes (FernUni Switzerland & University of Fribourg) and Dr. Jo van Herwegen (UCL London) - joined forces in March this year to create an online questionnaire (see www. specialneedscovid.org).
Written evidence from an international collaboration between Dr Jo Van Herwegen (UCL, Institute of Education), Dr Olympia Palikara (University of Warwick), Prof Deborah Riby(Durham University), Dr Mary Hanley (Durham University), Dr Sinead Rhodes (University of Edinburgh), Aikaterini Giannadou (The University of Sheffield), Prof Andrea Samson (University of Fribourg & Swiss Distance University Institute), Dr Daniel Dukes (University of Fribourg & Swiss Distance University Institute & Swiss Center for Affective Sciences, University of Geneva).
The impact of the COVID-19 pandemic on the wellbeing of families is likely to be profound and affect those with special needs the most. This submission provides a summary of a recent survey (April-May 2020) in the UK that examined the impact of COVID-19 for families of children with special educational needs and disabilities (SEND) aged 0-18 years old with a focus on
Article from Spectrum by Laura Dattaro
When the coronavirus pandemic first forced universities and labs to close, research teams raced to save their work and adjust to a socially distant world. Now, weeks into the crisis, many scientists are moving their investigations to virtual and online formats, a shift that may bring lasting changes to autism research. (…)
Our website is online.
Families of children/young people and adults with severe disabilities are forgotten in the whole pandemic discussion. Schools and kindergartens are closed, short term, holiday programs, hospices - everything closed - all support falls away. That is the biggest problem. Even before Corona, families with special needs were already living in social isolation…